AADR Advocacy Day on Capitol Hill, Thursday April 19th

Given the significant cuts facing NIH and other agencies in FY13, member attendance at the annual AADR Advocacy Day on Capitol Hill is now as important as ever. AADR is assembling a program that will provide attendees with a brief overview of the funding and political landscape in Washington DC, as well as an afternoon of meetings with elected officials and Congressional staff. In just one day, you can have a tremendous impact on the future of federal investments in dental education and research.

Thursday April 19th
9:45 – 11:45am Issues Briefing w/Members of Congress (Cannon House Office Bldg., Rm. 122)
12 – 5pm Individual Meetings with Members of Congress and/or Staff

Contact Jonathan Nurse (jnurse@aadronline.org), AADR Director of Government Affairs, to register for the day and obtain additional information. Registration closes on March 26th.

NIH Issues Two New RFIs: Diversity, Informatics

The National Institutes of Health is seeking feedback through two new Requests for Information.

Input into the Deliberations of the Advisory Committee to the NIH Director Working Group on Diversity in the Biomedical Research Workforce
Notice Number: NOT-OD-12-031
Response Date: February 24, 2012

Background
The Advisory Committee to the NIH Director (ACD) has established a working group to examine diversity in the biomedical research workforce (see http://acd.od.nih.gov/DBR.asp for charge and roster) and provide concrete recommendations to the ACD and the NIH Director on ways to  enhance diversity throughout the various research career stages, particularly with regard to underrepresented minorities, persons with disabilities, and persons from disadvantaged backgrounds. The Working Group on Diversity in the Biomedical Research Workforce has considered the evidence presented in “Race, Ethnicity, and NIH Research Awards” published in the August 2011 edition of Science and additional data provided by the NIH. This data shows that R01 applications from Black or African American PhD applicants between 2000 and 2006 did significantly worse than those applications from White applicants, even after controlling for observable characteristics. The article and a corresponding policy piece by NIH Director Francis Collins and NIH Deputy Director Lawrence Tabak can be found at http://www.sciencemag.org/hottopics/race-nihfunding/.

The Working Group would like to gather input from various sources, including extramural and intramural researchers, academic institutions, industry, and the public, to help inform the development of recommendations to present to the ACD and the NIH Director on actions the NIH can take to increase the diversity of the biomedical research workforce.

Full RFI

Input into the Deliberations of the Advisory Committee to the NIH Director Working Group on Data and Informatics
Notice Number: NOT-OD-12-032
Response Date:  March 12, 2012

Background
The Advisory Committee to the NIH Director (ACD) has established a working group to investigate the management, integration, and analysis of large biomedical datasets (see http://acd.od.nih.gov/DIWG.asp for charter and roster).  The group will gather information from various sources, including internal and external data and informatics experts, and develop recommendations to present to the ACD and the NIH Director on policies regarding the management, integration, and analysis of research data and administrative data.

Full RFI

PCORI Seeks Public Comment

The Patient-Centered Outcomes Research Institute (PCORI) has released a draft research agenda for public comment. Comments can be submitted through the PCORI website until March 15, 2012.

PCORI is an independent, non-profit health research organization. Its mission is to fund research that offers patients and caregivers the information they need to make important healthcare decisions.PCORI focuses on “comparative clinical effectiveness” research. These are studies that compare options for preventing disease and providing treatment and care. PCORI does so by:

1. Identifying national priorities for research.
2. Creating a research agenda based on identified priorities.
3. Funding research consistent with these priorities and agenda.
4. Providing patients and their caregivers with useful research information.

PCORI’s Proposed National Priorities for Research

PCORI has prioritized five research areas. These focus on information that patients and caregivers need in order to make important healthcare decisions. PCORI strives to meet the needs of all patients. PCORI’s proposed national priorities for patient-centered comparative clinical effectiveness research are:

  • Comparative Assessments of Prevention, Diagnosis, and Treatment Options. The research goal is to determine which option(s) work best for distinct populations with specific health problems.
  • Improving Healthcare Systems. Focuses on ways to improve healthcare services, such as the coordination of care for patients with multiple chronic conditions.
  • Communication and Dissemination. Looks at ways to provide information to patients so that they, in turn, can make informed healthcare decisions with clinicians.
  • Addressing Disparities. Assures that research addresses the healthcare needs of all patient populations. This is needed as treatments may not work equally well for everyone.
  • Accelerating Patient-Centered and Methodological Research. Includes patients and caregivers in the design of research that is quick, safe, and efficient.

Full PCORI Notice

AADR Responds to OSTP RFI on Scholarly Publications

AADR responded to the recent Request for Information (RFI) on open access to scholarly publications, issued in November by the White House Office of Science and Technology Policy. In the response, AADR expresses support for broad dissemination of the results of federally funded research. The Association also calls on the Administration to carefully consider the costs associated with the post-grant peer review process when developing open access policies, and to examine the possibilities for enhancing the end-of-grant reports submitted to agencies -as a mechanism for providing the public access to the results of federally funded research in easy to understand terms.

AADR Response to OSTP RFI on Scholarly Publications

A Look Back at 2011 on the Hill: The Good, the Bad…

2011 was an eventful year on Capitol Hill, although at times it appeared that not much was actually being produced. AADR Government Affairs has created a 2011 Legislative Review that provides a bottom line to all of the back-and-forth in Congress -as related to federal investments in dental research.

This year we will need as much participation from the AADR membership as is possible, given that federal agencies critically important to research are now facing a near 8% across-the-board cut on October 1st if Congress fails to act. Later this week, we will provide details on the April Advocacy Day on Capitol Hill. The day will provide a quick and easy way for participants to have a tangible impact on the FY13 appropriations process.

AADR 2011 Legislative Review

CRS Report: Discretionary Spending in the Affordable Care Act

The Congressional Research Service is out with a new report that captures discretionary spending in the Affordable Care Act. The funding outlined in the report is subject to the annual appropriations process, including the across-the-board cuts triggered by the failure of the so-called Super Committee to produce a deficit reduction plan. Of note, some items have already been modified or removed as a result of the FY10-FY12 appropriations processes. Most of the ACA discretionary components actually funded by Congress so far (FY10-FY12) have been reauthorized existing programs. Few new programs have received appropriations from Congress.

As many will recall, the legislation authorized/reauthorized some items of interest to the dental community: General, pediatric, and public health dentistry training; alternative dental health care provider demonstration (removed through FY12 appropriations process); public health workforce programs; five-year national oral health education campaign through CDC, as well as grants for dental caries disease management programs; school-based dental sealant programs; and oral health surveillance systems -to name a few.

CRS Report: Discretionary Spending in the Affordable Care Act