On June 1st, the organization with over 10,000 graduate students known as Stand With Science (SWS) published an op-ed in The Journal of Science Policy & Governance, highlighting the need student engagement and advocacy for the protection of science funding. Following an explanation of the sequester and its impact to the R&D industry as a whole, SWS discusses funding cuts that impact the student community: “We as graduate students must be concerned about cuts to all science funding, as all cuts to science are cuts to our future livelihoods as much as they are cuts to our nation’s competitiveness.” They follow with a subsequent call to action to the research community as a whole: “We believe the roll of the scientist should not be limited to the laboratory, and that [we] have a responsibility to contribute to important policy debates concerning science and science funding.”
See the article here.
Rep. Paul Ryan discuses budget sequestration prospects
Yesterday, January 29th, advocates for non-defense discretionary (NDD) programs within the federal budget gathered for a town hall meeting to discuss strategy for further engaging Congress on the impending across-the-board spending reductions.
As mentioned on this site and many others, in just a few weeks budget sequestration will severely reduce NDD and defense spending. The NDD stakeholders group represents hundreds of impacted issue areas from law enforcement to education to medical research. Continue reading
The Patient-Centered Outcomes Research Institute (PCORI) has released a draft research agenda for public comment. Comments can be submitted through the PCORI website until March 15, 2012.
PCORI is an independent, non-profit health research organization. Its mission is to fund research that offers patients and caregivers the information they need to make important healthcare decisions.PCORI focuses on “comparative clinical effectiveness” research. These are studies that compare options for preventing disease and providing treatment and care. PCORI does so by:
1. Identifying national priorities for research.
2. Creating a research agenda based on identified priorities.
3. Funding research consistent with these priorities and agenda.
4. Providing patients and their caregivers with useful research information.
PCORI’s Proposed National Priorities for Research
PCORI has prioritized five research areas. These focus on information that patients and caregivers need in order to make important healthcare decisions. PCORI strives to meet the needs of all patients. PCORI’s proposed national priorities for patient-centered comparative clinical effectiveness research are:
- Comparative Assessments of Prevention, Diagnosis, and Treatment Options. The research goal is to determine which option(s) work best for distinct populations with specific health problems.
- Improving Healthcare Systems. Focuses on ways to improve healthcare services, such as the coordination of care for patients with multiple chronic conditions.
- Communication and Dissemination. Looks at ways to provide information to patients so that they, in turn, can make informed healthcare decisions with clinicians.
- Addressing Disparities. Assures that research addresses the healthcare needs of all patient populations. This is needed as treatments may not work equally well for everyone.
- Accelerating Patient-Centered and Methodological Research. Includes patients and caregivers in the design of research that is quick, safe, and efficient.
Full PCORI Notice
Purpose: The purpose of the PCORI Pilot Projects Grant Program is threefold. First, the applications themselves will assist PCORI with ongoing development and enhancement of national research priorities for patient-centered outcomes research. Applicants will be expected to establish the significance of the proposed research and build a case for why it should be considered a guiding question for PCORI. Second, the PCORI Pilot Projects Grant Program will support the collection of preliminary data that can be used to advance the field of patient-centered outcomes research, providing the platform for a future PCORI research agenda. Third, the PCORI Pilot Projects Grant Program will support the identification of methodologies that can be used to advance patient-centered outcomes research as well as identify gaps where methodological research needs further development. Continue reading